Celiac Chicago - Learning How to Live Gluten-Free

Gluten Free and Autistic Spectrum Disorders

2008-11-11T09:48:00.006-06:00

I have a theory that I want to share with anyone who will listen. I do believe that a gluten free diet would benefit children on the spectrum. Gluten is a toxic protein for everyone. We cannot digest it properly and thus chaos erupts! I cannot tell you how many people I have met that have children on the spectrum and also have celiac disease. I believe there is a connection. My own son has spectrum issues.

I believe 30% of all Americans carry these celiac genes. Wouldn't it be something if we could find out what specific genes these children on the spectrum have in common! I also believe that the genes are triggered by the vaccination schedules. I am not against vaccinations, however, I would suggest that you develop your own schedule and ask the doctors to separate them (especially the MMR). They can do this, but this is inconvenient for the doctor. Do what you know your GUT is telling you! (No pun intended)

Many parents say that the GF diet doesn't work for their children. If you cheat once in a while and give them a gluten-filled snack, it won't work. Also, you may not be aware of the hidden gluten-containing ingredients in everyday foods- Rice Krispy treats have malt flavoring (malt is made from barley and that contains gluten!)

You may be toasting their GF bread in the same toaster that you toast your Wonder bread. This is a cross-contamination issue. Crumbs can contaminate the GF bread etc...

If you are going to try a GF diet for your child on the spectrum, you need to educate yourself on the hidden gluten containing ingredients, why you can not cheat, and possible cross contamination issues in your kitchen.

I have not mention casein free (CF) information because I do not know enough about this to share. Please visit http://www.gfcfdiet.com/

2008-10-26T11:39:00.000-05:00

From my son, Ricky....PLEASE RECYCLE!

Is your prescription gluten-free?

2008-10-26T11:35:00.003-05:00

If you take meds (over -the -counter or prescribed by a doctor) you need to know if they are gluten-free. Don't assume the pharmacist or doctor will know. My experience is that they do not know and it is up to you to find out. Check out www.glutenfreedrugs.com for information.

Upcoming Events

2008-09-27T09:30:00.004-05:00

Wednesday, November 12, 2008 - 6:30 - 8:00pm
2008 Update: What's New in the Treatment of Celiac Disease
Speaker:Location:Other Event Info:RSVP:
Mark DeMeo, MD, Director, Adult Celiac Disease Program at Rush Rush University Medical Center Armour Academic Facility, Room 540 600 S. Paulina, Chicago, IL 60612 312-942-8570

Dr. Mark DeMeo is the head of the Adult Celiac Disease Program at Rush. At this free seminar, he will be provide patients with the latest news and research in the management and treatment of celiac disease. Transportation Info: By Car: Rush University Medical Center is located off the Eisenhower Expressway (I-290) at Paulina/Ashland. From the east, take a left a the light onto Ashland, and then a right onto Harrison. Follow signs for the parking garage. From the west, take the Paulina/Ashland exit, then take a right onto Ashland and then your next right onto Harrison. Follow signs for the parking garage. For more information and directions, visit http://www.rush.edu/. By Train: Metra riders to Union Station then the #7 bus to Paulina. From Northwestern Train Station, #7 bus from Canal and Jackson to Paulina Street.

Every Month
Check for support group information on the right hand side of this website under support groups in your area!

ALLERGAROO-All Natural Ready Made Dishes

2008-09-27T08:57:00.004-05:00

I cannot tell you enough how great the GF Cooking Expo was-Great Job JEN! Another of my favorite vendors was ALLERGAROO http://www.allergaroo.com/ This awesome company was founded by Tabor, a mother of 2 children with multiple food allergies. The products are free of the 8 most common food allergens: wheat/gluten, milk, soy, peanuts, tree nuts, eggs, fish and shellfish.

Each 8 oz. package of Chili Mac, Spyglass Noodles and Spaghetti are microwave ready. I tried the Chili Mac and it was fantastic. These ready to take meals would be great for on -the- go people, travel, and quick after school meals. I highly recommend them.

Tabor said that they are available at some Jewel Stores in the Chicagoland area. For more information call her at 314-256-1433 or email her at info@allergaroo.com

GF Bread by Andrea's Fine Foods

2008-09-27T08:42:00.003-05:00

I had a fantastic time at the GF Cooking Expo in Oakbrook, IL. It was a great 2 days and I enjoyed talking to everyone. There were a lot of great vendors at this event. One of my favorite vendors was Andrea's Fine Foods http://www.andreasfinefood.com/ She had sandwich bread for sale ($7/loaf).

I tired it and immediately thought it was the best bread I have ever tasted! I swear you will enjoy it! You don't even have to toast it! I am down to my last loaf (freezes nicely) and will be buying more. Please contact her at 636-536-9953 or visit http://www.andreasfinefood.com/. She is looking for support groups in the area to contact her-she wants you to try her bread for FREE!

GF Foods become tastier!

2008-07-12T09:20:00.001-05:00

From Digestive Health SmartBrief
Gluten-free foods becoming tastier, more healthful
Companies are using more diverse ingredients and baking techniques that add taste, texture and healthful ingredients to gluten-free foods. One new trend is the use of ancient grains -- amaranth, quinoa and teff -- that do not have the gluten proteins that trigger celiac disease and also don't require the addition of fat and sugar to make the food palatable and help it stick together. Los Angeles Times (free registration) (7/7)

Gluten-free is the new health trend: Going gluten-free is a growing trend, and it's not just celiac disease patients who are adopting the diet. Some people believe a diet without gluten is just healthier or can help relieve digestive problems and boost energy. Los Angeles Times (free registration) (7/7)

Celiac Disease Foundation & Juice PLUS+

2008-06-22T09:00:00.000-05:00

I am a member of the Celiac Disease Foundation and just finished reading the Winter 2008 newsletter. I have been eating Juice PLUS (fruits, vegetables & grains) capsules for sometime. I was pleasantly surprised to listed on page 9, "Product News", of the CDF newsletter.

It stated, "Juice PLUS+ capsules are regularly tested using Tepnel ELISA methodology (AOAC method 991.19) for the presence of gluten, and can be classified according to the Codex Alimentarius Commission standard as gluten free."

I am a wellness educator and I enjoy educating people on the relationship between nutrition and disease. I do recommend Juice PLUS+ to everyone. It has been clinically proven to put the immune system into balance. Anyone with an autoimmune disease, or any disease, can benefit from better nutrition. Juice PLUS+ is whole food nutrition.

If you would like to order Juice PLUS+, please visit http://www.addsomejuice.com/ A portion of the proceeds, generated from customers with celiac disease, will be donated to the University of Chicago Celiac Disease Center.

To become a member of CDF visit http://www.celiac.org/

Red Robin- Gluten Free Menu? Is it safe?

2008-06-09T16:33:00.003-05:00

I thought I would share this information with everyone. My sister -in- law and I both have celiac disease~ what are the chances of that! This weekend we are celebrating my husband's birthday and Father's day, so we were looking for a GF friendly restaurant. I thought Red Robin was okay, you can get a burger wrapped in lettuce and the french fries are fried in a dedicated frier (no Red Robin seasonings on either). In fact, I ate there last week and had the above items without and outwardly ill effects, so that is why I suggested it.

Shame on me for not reading the fine print on the GF menu. I had it emailed to me from Angel at corporate angel@redrobin.com

Hi Lori,
All of our Red Robin restaurant team members are trained in proper allergy food handling. Please notify your server of your allergy and they will notify the manager on duty who will supervise your food preparation.
Thank you for choosing Red Robin!

Here is what the menu reads in red print

PLEASE READ:
Note: This page must accompany any and all allergen
information provided by Red robin.
(By the way, this page was not given to me at the Bolingbrook restaurant the day I ate there.)

THIS INFORMATION IS VALID ONLY FOR SELECT U.S. RED
ROBIN RESTAURANTS. RED ROBIN RELIED ON OUR SUPPLIERS’
STATEMENTS OF INGREDIENTS IN DECIDING WHICH PRODUCTS
DID NOT CONTAIN CERTAIN ALLERGENS. SUPPLIERS MAY
CHANGE THE INGREDIENTS IN THEIR PRODUCTS OR THE WAY
THEY PREPARE THEIR PRODUCTS, SO PLEASE CHECK THIS LIST
TO MAKE SURE THAT THE MENU ITEM YOU LIKE STILL MEETS
YOUR DIETARY REQUIREMENTS.

FROM TIME TO TIME WE MAY SUBSTITUTE PRODUCTS DUE
TO INVENTORY SHORTAGES. WE CAN’T BE SURE THAT THE
SUBSTITUTE PRODUCTS WILL BE FREE OF THE ALLERGEN YOU
WISH TO AVOID.

AS WE COOK, PREPARE, AND SERVE YOUR MEAL, THE LISTED
MENU OPTION MAY COME IN CONTACT WITH THE ALLERGEN YOU
WANT TO AVOID. FOR EXAMPLE, WE MIGHT COOK THE LISTED
MENU OPTION ON THE SAME BROILER AS A MENU ITEM THAT
CONTAINS THE ALLERGEN YOU WANT TO AVOID. THAT’S JUST THE
WAY OUR KITCHEN IS SET UP. RED ROBIN CANNOT GUARANTEE
THAT ANY MENU ITEM WILL BE PREPARED COMPLETELY FREE OF the allergen you are trying to avoid.

Does this sound safe to you? So what if they have a GF menu! They certainly do not want the the business of the 3,000,000 plus Americans living with celiac disease~ not to mention our buddies with gluten intolerance! Do your homework, Red Robin! Please do not advertise that you have a GF menu because your safety practices stink! Email Angel angel@redrobin.com and tell her what you think.

We are eating at one of the other GF restaurant listed on this site.....Remember, there is ALWAYS a risk when eating out, however, some restaurants are more safe than others. Don't be fooled just because they offer a gluten free menu!

Maggiano's GF Dinner

2008-05-18T12:06:00.004-05:00

I recently had a chance to dine with some friend in the city and I suggested Maggiano's on Clark street. I have heard trhough the GF circles that they will prepare you a fine gluten free meal ( with rice pasta!) They do not have a gluten free menu per se, however, I was treated very well. The manager knew I needed a gluten free meal (I called ahead-and requested this when I made my reservation). I when it comes to gluten free dining it seems that the Lettuce Entainment Restaurants (Wildfire, Maggiano's, PF Changs...) are two steps ahead of the other restaurants!

The head chef came to my table and asked me what I would like. We discussed her recommendations and I chose the linguine rice pasta with Alfredo sauce, shrimp and broccoli. She also showed me a yellow ticket that was attached to my order warning all kitchen staff of a gluten alert (she called it an allergy...).

Even though I could not partake in the bread being dipped in olive oil, I was happy with my bottle of red wine! Everything was great! They even gave me my dessert (a mixture of huge blackberries, blueberries and strawberries with fresh whipped cream) for FREE!

Gluten Free Sweets

2008-05-18T11:58:00.004-05:00

I am always getting new information and websites emailed to me to share on this website. I was excited to hear about Roh & Jo's Gluten Free Sweets, Inc. What a great resource for people on a gluten-free diet. I do not bake and I am always looking for a shortcut when it comes to cookies, pies and cakes. My birthday is not until January, but I plan on contacting Roh & Jo for my birthday cake! Anyone tried their sweets? Let us know what you think! www.glutenfreesweets.com

I AM GLUTEN FREE

2008-05-12T10:53:00.004-05:00

Eating out is still complicated, especially when the people you are dining with don't understand your dietary needs. Sometimes I am made to feel ashamed of my illness. It seems to embarrass some members of my family. This is very sad, and I'm struggling to deal with it. That is why it is important for Celiac's to have a support system. My Mother's day celebration would have been better if we ate at home or a restaurant with a designated gluten-free menu. I like this message card and I will keep a copy of it in my purse from now on. I know there are companies that you can purchase these cards from, but you can also make your own.

New GF Support Group- River Forest

2008-03-20T09:25:00.001-05:00

Gluten Free/Special Diets Support Group-River Forest Whole Foods
6:30–7:30 p.m. Free! Participants must register in advance.

Meet others who are changing to the gluten free way of life to offer your support, share tips and tricks and gain momentum in taking charge of your health. In this our first meeting, Jen Cafferty will bless us with the recipe and demo of one of her great gluten free recipes! Ought to be a terrific first meeting and a great chance to learn. Please call (708) 366–1045 to register. This meeting will be held once a month with a different speaker/demo every month in the café!

Kristy Lockhart Marketing Specialist Whole Foods Market7245 W. Lake Street River Forest, IL 60305kristy.lockhart@wholefoods.com708.366.1045 x 126 fax: 708.366.1044

GOODDAY Gluten-Free

2008-03-15T11:58:00.004-05:00

I found this website this morning and I found it to be very good!

Visit http://www.gooddayglutenfree.com/ for great GF food at reasonable prices.

Rose's Wheat - Free Bakery, Evanston

2008-03-10T18:53:00.001-05:00

Rose's WheatFree Bakery Is Open!
Allergy-friendly, Roses’ Wheatfree Bakery delivers absolutely delicious 100% gluten and casein free baked goods. Enjoy our oven fresh breads, buns, pastries, cookies, pizza crust and cakes. Custom wedding and birthday cakes are our specialty!
Viisit our retail location and cafe at 2901 Central Street, Evanston, Illinois.
You can always reach us at 847-859-2723.
Soon, you will be able to order online here at http://www.rosesbakery.com/

Gluten Free Success for the College Student

2008-03-08T08:46:00.003-06:00

Gluten Free Success for the College Student is a spiral bound manual that you can use as a checklist and workbook as you go through the college planning process. It then becomes a recipe guide for the student in the dorm room.

This guide will be invaluable to you as an entry student or as a returning student and to parents. If you would like more information or to order your copy of Gluten Free Success for the College Student, please click on this link or go to glutenfreesuccess.com.

Thank you for spreading the word about this valuable resource.
Sincerely yours,
Joanne BradleyGlutenFreeSuccess.com
GlutenFreeGrains.com
jbradley@glutenfreesuccess.com

New Gluten Free Grocery -Western Suburbs

2008-02-29T11:35:00.002-06:00

OPENING IN APRIL, 2008
GLUTEN-FREE GROCERY is the only store in Chicago's western suburbs where 100% of the inventory is gluten-free! With more than 500 different gluten-free products, you can easily find your tried and true favorites, as well as find new favorites to add to your life.
Come visit us and shop freely knowing that every item in the store is safe for those with celiac disease, gluten intolerance or wheat allergy.

Located in west suburban Westchester, IL, we are easily accessible from all major Chicagoland highways - I-290 (Eisenhower), I-294 (Tri-State Tollway), I-88 (Reagan Memorial) and I-55 (Stevenson).Hours of operation:Monday-Saturday: 10:00 AM - 6:00 PM*****We are closed Monday-Friday between 11:45 - 12:15 PM*****Sundays: Closed

Visit www.gfgrocery.com for more information.

Superfood Quinoa is Gluten- Free!

2008-02-27T08:40:00.006-06:00

Who needs wheat, barley and rye when you can have quinoa! (pronounced KEEN-wah)
Quinoa is a true wonder food," says Daniel Fairbanks, Ph.D., a professor of plant and animal science at Brigham Young University. "It has about twice the protein of regular cereal grains, fewer carbohydrates, and even a dose of healthy fats." Plus, it's considered a "complete" protein, which means that, like meat, eggs, and dairy, it packs all of the essential amino acids your body needs to build muscle. It is yummy and good for you.
To learn more visit http://body.aol.com/healthy-living/nutrition/superfood-quinoa
For yummy recipes visit http://body.aol.com/healthy-living/nutrition/superfood-quinoa/page2

Gluten Free Store Tour

2008-02-27T08:07:00.001-06:00

Thursday, February 28th Gluten–Free Store Tour6:00 p.m. Free!
River Forest Whole Foods

Participants must register in advance. Whether you've been gluten–free for years or are just changing your diet, it's hard to know which gluten–free products actually taste good. Now is your chance to taste them all! Join concierge Lauren and for a gluten–free tasting tour and explore all your gluten–free options! Please sign up at the customer service desk or by calling
(708) 366–1045 to register. Everyone who registers receives a free gift bag.

Save The Date! April 16, 2008

2008-02-23T09:58:00.002-06:00

The University of Chicago Celiac Disease Center Annual Spring Benefit -Spring Flours
Wednesday, April 16, 2008
Six until Ten O’Clock in the evening @ The Cathedral Room at The University Club
(76 East Monroe, Chicago)
Join us for multiple stations of delicious gluten free creations from Chicago’s best chefs & restaurants!
Call 773-702-7593 or visit www.CeliacDisease.net for more information

Celiac Disease Study

2008-02-22T08:53:00.002-06:00

New Celiac Disease Study Raises Funds For GIG-from Celiac Chicks

Volunteers are needed for a University of North Carolina at Greensboro Study on health-related quality of life, cognitive performance and Celiac Disease.

We need adults, with Celiac Disease, ages 20 and 75, to volunteer to complete questionnaires, cognitive tests, and fitness tests. Testing will take approximately 2 hours.

Ideally, you would have to be able to travel to North Carolina (Greensboro, Winston-Salem, Chapel Hill, Durham, Raleigh, Charlotte, Boone, or Ashville), Pennsylvania (Philadelphia, Montgomery, or Bucks County) or Naples, Florida. If there is enough interest in another United States city, then I would consider traveling there.

You will receive information regarding your aerobic fitness and a small donation will be made to the Gluten Intolerance Group in your name.
For more information, email or call Lisa A. Barella at lisabarella@hotmail.com
or (336) 253-5539.

Neurological Problems & Celiac Disease

2008-02-18T08:17:00.005-06:00

Recently a friend sent me an article about celiac diesese by a doctor in Colorado. His name is Dr. Scot Lewey and I believe he and his wife, has celiac disease. He has a site great site! http://www.fooddoc.com/.

Many of the non- gastroinstential symptoms I have been expercineing have been explained in this article and I thought it was important to share it with you. ~Lori
http://ezinearticles.com/?Brain-And-Neurological-Problems-Affect-Almost-Half-Of-Celiacs-Even-With-A-Gluten-Free-Diet&id=904155

The Balanced Kitchen

2008-02-12T09:36:00.001-06:00

I have heard about this new gluten free/ vegan dining establishment from a couple of people, but I have not been able to travel into the city to enjoy a nice lunch/dinner. If you have had a meal there, and would like to share your comments, please take a moment to respond. Thanks! Lori
http://www.gfreev.com/aboutus.html

U of C --Celiac Disease Newsletter

2008-02-10T12:40:00.002-06:00

The Winter 2008 edition of Impact, The University of Chicago's quarterly newsletter is now available at:http://www.celiacdisease.net/newsletter
This issue features an article on celiac disease and infertility by Dr. Stefano Guandalini.

Plocky's Gluten Free Hummus Chips

2008-02-06T18:24:00.001-06:00

To my surprise, I found yummy gluten free hummus chips in a gift shop at a waterpark in Lake Geneva, Wisconsin! Ironically, these chips are distributed by Plocky's Fine Snacks NatureStar Foods Inc, in Hinsdale Illinois. Why haven't I seen these before? I tried the Roasted Red Pepper Hummus Chips. They are a nice alternative to corn and rice chips. There are no trans fat, gluten free and certified kosher. Go to http://www.plockys.com/ for more information.

Response from Plocky's:
Lori -
Thank you for your interest in Plocky's Fine Snacks, and for the wonderful comment on the site! Plocky's Hummus Chips are randomly tested by our certified lab. We use an ELISA Gluten Assay test to determine if they are gluten free. They are not made in a dedicated gluten-free facility. We appreciate you taking the time to inquire about our product.

Lisa HuxholdPlocky's Fine Snacks(630) 323-8888 - Phone (630) 323-8988 - Faxplockys@aol.com

Wildfire- What a disappointment!

2008-01-21T09:17:00.003-06:00

I decided to celebrate my birthday with my husband and son at Wildfire in Oakbrook this past weekend. I choose this establishment based on the excellent selection of GF entrees and their supposed knowledge of GF/Celiac needs. It started out fine and quickly went downhill.

I made the reservation online and explained that I needed a GF menu and that I had Celiac Disease. We arrived and I was given the menu and escorted to the table. I explained to the waitress that I had Celiac's and that I was dining gluten free. She seemed to know what I was talking about. This is where the problems began. I ASSUMED she knew what was gluten free and what wasn't and that my dining experience would be fine.

Note: We arrived at 11:45 am for our reservation. When it was all over it was close to 2 pm. When dining gluten free it always takes much longer! Little things make a world of difference. What may seem like no big deal to a waitress/waiter or manager, the attitude of the staff can ruin a dining experience.

I ordered the Filet Medallions Oscar and the Wildfire chopped salad. I was served the salad with an vinegar and oil dressing. I was told by her that this was the only dressing I could have. I explained to her that the ranch was listed on the GF menu and that I would like to have that. She then said, "Oh, I think we have GF bread. Would you like some?" I said yes and 10 minutes later I was given a toasted roll without butter. I asked for butter and she said, "Oh you cannot have our butter. It has something in it you cannot have." She walked away. I looked at my husband and said, "Pure whipped butter doesn't contain gluten!" It was her attitude and ignorance that made me upset.

I was then told 20 minutes later that they could not make the sauce for my dinner (they do not make it until after 4 pm) and that they would just give me the filet-which I really didn't want, but accepted. When my filet came, I asked for some steak sauce and was told they didn't have any steak sauce that was gluten free. I knew they had A-1 and there are no gluten containing ingredients in A-1. This is when I asked to speak to a manager.

The assistant manger came over and explained that the waitress was new and that she made a mistake. He also said I could have the butter. I told him I was disappointed and I specifically choose this restaurant because it was supposed to be GF and Celiac friendly. I asked him why they have not trained ALL of their staff on GF dining and that is when he became a little defensive. His attitude had changed from friendly to defensive. If you have had a similar experience when trying to dine GF, you just want to cry and I did! I had lost my appetite and my birthday dinner was ruined.

At this point, my son was done and wanted to go, my husband seemed a little upset and I didn't want to be there anymore. I wrapped my own steak to go and my son and I headed for the door while my husband, unknown to me, had a second conversation with the main manager, Tim Mahler, who admitted fault and was apologetic.

He adjusted the bill, which was nice, but my birthday dinner was a disappointment. Why? It was the initial attitude and ignorance of the wait staff that ruined the experience. It seems management is not training ALL employees on what it means for the customer to have a GF dinning experience. I do not think we will be going to Wildfire again.

Bruce Restaurant Review CSA/GC

2008-01-04T10:58:00.001-06:00

HAPPY NEW YEAR TO ALL!
I recently dined at the following restaurants and wanted to pass this information to you. Stillwater Restaurant and Wine Bar:Located at 5141 Main Street in Downers Grove (630 324-4291)Under the direction of owner/chef Mark Stutz. Open 7 days for lunch/dinner.This is the kind of place you dream about. The entire staff is very aware of dining GF.

They use color coded pans, utensils, dedicated oven and Chef is very detailed on the issue.I have been there twice and both times my seafood entrees were perfect. Nice selection of appetizers which include Garlic/Goat cheese pita (GF of course), crab salad, wonderful salads and very tasty french onion soup.Do not miss the exceptional Flourless Chocolate cake!The GF menu is classy and in addition to whats offered on the GF menu, dont overlook items on the regular menu. Many are already GF or can be made GF, and the Chef will advise you further.

Anthonys Italian Chop House:Located at 1909 Spring Rd in Oakbrook (630 472-6000) in the Doubletree Hotel. Under the direction of CSA Executive Chef Aaron Flores. Open daily EXCEPT SUNDAYS from 5p-10p. This is a GF oasis for dining options and you will look forward to visit again. Chef Flores was in and he advised how they use a seperate cooking area and the staff undergoes extensive training on how to prepare GF meals.Another classy GF menu. They serve you some of the very best rolls, those I dined with wanted my rolls instead of thier bread.

I had thier signature dish, Seafood Risotto and it was fantastic. The menu offers a variety of options with a Mediterranean flair and Chef Flores updates the choices. I did notice GF brownies and other dessert items listed.The Atrium Cafe (did not try) is open daily for bfast/lunch and I was informed offers a GF menu. My intentions are to send out an email several times a month with Restaurant Reviews. Restaurant Review forms are avlb, contact me to have them sent to you.

I REALIZE WE ALL HAVE DIFFERENT TASTES, BUT THESE CHEFS HAVE GONE OUT OF THEIR WAY TO CREATE SAFE DINING. LETS SHOW UP TO THESE AND OTHER RESTAURANTS TO SHOW OUR SUPPORT, CAN YOU IMAGINE WHAT IT WOULD BE LIKE IF WE DIDNT HAVE THESE OPTIONS!

Dining tip:Every Chef I have spoken with here in the Chicagoland area or when I travel inform me how much they APPRECIATE knowing in advance that I will be dining and what my dietary needs are (specifically those restaurants without a GF menu)..... HAPPY DINING! Bruce Restaurant Review CSA/GC

Biaggi's Ristorante Italliano

2007-12-31T10:11:00.002-06:00

My girlfriend Cindy and I wanted to have a nice holiday dinner together, so I suggested Biaggi's in Naperville. I have heard great things about this restaurant from people in my gluten-free support group. I downloaded the menu, called ahead and talked with the manager and chef John Brandou. I asked the usual questions regarding cross-contamination issues in the kitchen. I was assured that the pasta was gluten-free (they use Tinky'ada) and they use a separate pot and tongs. John was a delight to talk to and he was well aware of my dietary needs.

I was so excited when my meal came to the table! I ordered Farfalle Alfredo which had grilled chicken, GF spinach pasta, roasted red peppers, crispy Italian cured ham, sauteed red onion and peas tossed in an alfredo sauce with asiago cheese. It was so delicious ans creamy that I ate the whole thing! For dessert I had the raspberry sorbet which was very nice too!

Call ahead for a reservation 630.428.8500. They have a real gluten free menu! You can also download one from http://www.biaggis.com/

When eating out, there is always a risk that a person with Celiac Disease could become sick. You need to decide for yourself if you want to dine at Biaggi's. Call and ask to talk with John. Bon Appetite!

Gluten- Free Pizza at Aurelio's-UPDATE

2007-11-02T12:57:00.001-05:00

UPDATE_ Please read response by Kris in the comment section. I will forward all info to Team Aurelios"s. What Kris and her husband discovered is scary-so please be aware that if you choose to eat out at ANYWHERE, there is ALWAYS the possible (and probable) cross contamination issues! I have eaten the GF pizza at Aurelios, and did not have any outward reactions, but that doesn't mean that I didn't ingest gluten due to cross contamination issues.

All Aurelio's locations now carry a gluten- free personal size pizza. I have had the gluten-free pizza in Frankfort, IL, and was told by fellow celiacs that other locations were now carrying them. I recently wrote to Aurelio's and "John" from the Aurelio's Team told me that all locations now serve gluten - free pizza.

It has been rumored that a member of the Aurelio's Team has a relative with Celiac Disease and that is why they developed a gluten- free pizza. The pizza is good and the crust is thicker than what I like. If Aurelio's could use the same thin crust that Foods by George uses for their pizza, they would have a real winner.

I am not sure how each location handles cross contamination issues. Are they using a separate spoon and sauce bowl? Do they change gloves or wash their hands before they make the gluten -free pizza? Can they assure us that all ingredients are safe and have not come into contact with any wheat (gluten)? These are issues that I think we need to think about and share with the restaurants that we patronize.

Starbucks and GF Brownies!?

2007-10-22T13:29:00.001-05:00

It has come to my attention that some Starbucks across the country are carrying GF brownies, however, Chicagoland Starbucks are not. Starbucks is interested in finding out how many people are interested in having gluten free products sold in their stores. Please take a moment to call them at 1-800-235-2883.

Are Your Medicines and Vitamins Gluten - Free?

2007-10-09T10:20:00.001-05:00

Celiacs not only have to worry about what kind of food they eat, but they also have to make sure that the medicines and other supplements they consume are gluten-free.

I have found this out the hard way when it came to checking for gluten in my medicine. It seems that pharmacists are not as well educated when it comes to being able to identify a gluten containing ingredients in medicine. Many manufacturers will use a starch that contains gluten as an inactive ingredient. I discovered that the generic brand of medicine that I take does contain gluten, but the name brand does not. Needless to say, I was mortified and disappointed. I feel that the Gluten Free Drug site http://www.glutenfreedrugs.com/ is a beginning to finding out if the medicine you might be taking is gluten - free. It is always best to call the drug manufactuer to make sure. The book, The Gluten Free Bible by Jax Peters Lowell, lists the top GF drugs and the manufacturer's phone numbers. Please educate your pharmacist on your findings.

As for vitamin supplements, which are not regulated by the FDA, I would suggest that you call the manufacturer and request a note stating that the product is gluten-free. If they will not provide one, don't use it!

Many people living with celiac disease choose to take over -the- counter supplements to help support their immune system. I take Juice PLUS, which is tested regularly using the Tepnel ELISA methodology for the presence of gluten. The results show that Juice PLUS is less than 20 parts per million gluten. (The company will supply you with a statement at your request. ) Juice PLUS is also recommended by a lot of doctors, including renowned pediatrcian, Dr. William Sears. It was also featured in Oprah's magazine as being one of the best supplements.

Testing at 20 parts per million will soon be the new American standard in order for a product to be labeled gluten-free. I highly recommend this gluten-free whole-food supplement. It is the only product I trust and recommend for people with or without celiac disease. It is fruits and vegetables in a capsule or chewable! How cool is that?! For more information on Juice PLUS visit http://www.addsomejuice.com/

Yummy GF Cashew Crunch!

2007-10-05T12:46:00.002-05:00

I recently had a Gluten Free Whole Food Supplement (JuicePLUS) booth at a health and wellness fair in Frankfort, IL. The organizers provided lunch for the vendors and I was able to request a gluten-free lunch. I was given a great salad, an apple and a small snack size bag of Mrs. May's Cashew Crunch. It was so yummy! On the package it states: no cholesterol, gluten free, dairy free, vegan, wheat free and no preservatives. The Celiac Sprue Association even has their logo on the package. I was curious to find out where I could purchase this delightful snack and found out that Trader Joe's, Whole Foods, Costco and even Walgreens carry them. For more info visit http://www.mrsmays.com/.

Celiac Friendly Stores in Chicago Area

2007-09-28T13:24:00.002-05:00

Celiac Friendly Grocery Stores in the Chicago Area

The hardest part about buying gluten -free food is the price. Yes, I buy Whole Food's Gluten-Free Prairie Bread for $6.99/loaf! Please be prepared to have your grocery bill increase! Some of my favorite brands are Enjoy Life, Pamela's, Lundberg and Tinkyada and Pizza by George.

Below is a list of grocery stores are in the Chicago, IL area from the CSAGC. You can also find a lot of gluten-free food online by googling "Gluten Free Food". Another source for brand names and shopping is from the website of the Celiac Disease Foundation http://www.celiac.org/lifestyle/downloads/SUGGESTED-SOURCES-2_07.pdf This list is provided as a convenience to newly diagnosed celiacs in finding a place to purchase gluten-free products, and does not imply endorsement of any business by any celiac disease organization or group.

Even though a manufacturer or a store may label a product as 'gluten-free' only you can make the decision to include it in your diet. Continue to read labels, and to ask questions politely, of course! Call first to make sure the store is still in business.

A Way of Life 9359 N. Milwaukee Ave (In Millbrook Shopping Center) Niles, IL 60714 Phone: 847-966-5565

Always Healthy 123 S. Rand Road Lake Zurich, IL 60047 Phone: 847-438-9200

American Health Foods 5142 W. 95th St Oak Lawn, IL 60453 Phone: 708-423-5099

Corner Health Food Store 502 N. Seymour Ave. Mundelein, IL 60060 Phone: 847-566-4888

Countryside 1166 S. Elmhurst Rd Mount Prospect, IL Phone: 847-952-4372

Crystal Lake Health Food Store 25 E. Crystal Lake Ave Crystal Lake, IL 60014 Phone: 847-459-7942

Dominicks, Jewel and Meijer Numerous locations throughout the city and suburbs.
Major supermarket chain. Bring your gluten-free product guide with you.

Earthly Goods Health Foods Inc. 6951 W. Grand Ave New strip mall just west of Gurnee Mills w/Linens 'N Things and Old Navy) Gurnee, IL 60031 Phone: 847-855-9677

Eurofresh Market 130 NW Hwy Palatine, IL 60067 Phone: 847-202-0333

Gluten-Free Store 807 Waukegan Rd Corner of Dundee and Waukegan Roads Northbrook, IL 60062 Phone: 847-513-6515
Formerly known as "Gluten Free Market" in Buffalo Grove.

Fruitful Yield 2129 W. 63rd Street, Downers Grove 60516 630-969-7614 229 W. Roosevelt Rd, Lombard 60148 630-629-9242 154 S. Bloomingdale Rd, Bloomingdale 60108 630-894-3553 175 W. Golf Road, Schaumburg 60195 847-882-2999 214 N. York Rd, Elmhurst IL60126 630-530-1445 302S. McLean Blvd., Elgin IL 60123 847-888-0100 and Aurora near Fox Valley Mall 630-585-9200

Gluten-Free Trading Company 3116 S. Chase Ave. Milwaukee, WI 53207 Phone: 414-747-8700 FAX: 414-474-8747 . It is suggested that you call ahead to verify hours.

Hilke's Nutrition Center 1691 Morthland Dr. Valparaiso, IN 46385 Phone: 219-477-4005 2917 Calumet Ave, Valparaiso IN 46383 Phone: 219-464-7818

Mitsuwa Marketplace 100 E. Algonquin Rd Arlington Hts., IL 60005 Phone: 847-956-6699
Oriental (predominantly Japanese) supermarket. Lone Star Natural Foods 311 N. 2nd Street St. Charles IL 60174 Phone: 630-584-7650

Natural Choices 1338 N Cedar Road New Lenox, IL 60451 Phone: 815-485-5572
Has a good selection of gluten-free products. Pricey.

New Vitality Health Foods 9177 West 151st Street Orland Park, IL 60462 Phone: 708-403-0120 Fax: 708-403-7041

Orland Meat Market & Deli 9105 W. 151st Street Orland Park, IL 60462 Phone: 708-403-0900 Carries Gluten Free Deli Lunch Meat- The brand name is Boar's Head.

Pass' Health Foods 7228 W. College Dr. (119th St) Palos Heights, IL 60463 Phone: 708-448-9114

Southtown Health Foods 2100 W. 95th Street (NW corner of 95th & Hoyne) Chicago, Il Phone: 773-233-1856

Sunrise Farm Market 17650 Torrence Avenue Lansing, IL 60438 Phone: 708-474-6166

Sunset Foods 1127 Church Street Northbrook, IL 60062 Phone: 847-272-7700

Trader Joe’s Various Locations around the country http://www.traderjoes.com/
Good Waffles and pancakes!

Valli Produce 400 E. Golf Road (two blocks east of Arlington Heights Rd.) Phone: 847-439-9700 850 N. Roselle Road (SW corner of Roselle and Higgins) Phone: 847-252-7200

Whole Foods Market Whole Foods Market Location Search
Supermarket specializing in health foods and organic produce. Selection varies from store to store. All stores carry a variety of specifically gluten-free foods e.g. breakfast cereal, cookies, flours and mixes, pasta, and frozen breads and waffles. They also carry gluten-free brands of many other products.

Wild Oats Market 1111 Chicago Ave., Evanston, Illinois, 60202 Hours: Monday-Sunday 8a.m.-10p.m. Phone: 847-475-9492, 500 E. Ogden Ave. , Hinsdale, Illinois, 60521 Hours: Monday-Friday 7am-10pm, Saturday 7am-9pm, Sunday 7am-8pm Phone: 630-986-8500 They carry gluten-free breads, cereals, organic foods, and meats http://www.wildoats.com/

Restaurants and Eating Out

2007-09-28T10:14:00.001-05:00

Eating out will always be difficult for people living with celiac disease. My goal is to provide factual information that will allow people to make informed decisions on local restaurants that are or attempt to be gluten-free.

Cross contamination in the kitchen can occur when eating out. You need to be VERY careful. You can still have eaten gluten and may not have any outward reaction, so please be careful.

The information shared on this website will have come from myself and other fellow Celiac's experiences.

Eat out if you must, but always call ahead and talk to a manger and explain that you have celiac disease and cannot consume any gluten whatsoever! Remind your waitstaff of your condition and express your concerns about cross contamination in the kitchen etc. You will be able to tell by your conversation whether or not the restaurant can accomidate your needs. Trust your instincts and if you get a bad feeling, leave.

These reviews are based on my own personal experiences:

I give the following restaurants an A+ for knowledge of the disease, a gluten-free menu with variety, and great tasting food: Daluciano's.

I have dined at PF Changs in Chicago last year for the annual University of Chicago Celiac Disease Fundraiser and I have also visited the Orland Park restaurant. I highly recommend the GF lettuce wraps. I give them an A-/B+.

Ted Montana's Grill in Bolingbrook gets a grade of B. They did have a gluten-free menu, but it was missing and someone had to search for it. The menu choices were limited, but the waiter was very attentive and even asked me if I wanted the chef to come out to talk to me.

Red Robin offers a bunless burger and gluten - free fries. I have eaten at several, but the service varies. They never have a gluten free menu available! Download your own from the internet. The menu is limited so they get a C-/D+.

I have never had a good experience at the Naperville Outback Steakhouse . I have gotten sick twice! I'm not sure about the others in IL, but I will not dine there again. The servers did not have a clue about what the word gluten meant, even though I was assured by the manager before I walked in the door that I would be taken care of and that I shouldn't worry. They also did not have a GF menu ready when I arrived, even though I requested that it be there upon my arrival. I give them an D-/ at least they attempt to be gluten-free.

I have not tried Adobo, Biaggi's or Vinci's yet. Fellow Celiac's that I trust have all had a positive experience.

I know there are many more restaurants in the Chicagoland area that I have yet to try. I will find you! Beware- I am very truthful and will always come as a secret diner. ~Lori

Introduction to Celiac Disease

2007-09-08T12:08:00.001-05:00

What is celiac disease?
Celiac disease is an autoimmune digestive disease that damages the villi of the small intestine and interferes with absorption of nutrients from food. To put it simply, the body is attacking itself! It is NOT an allergy to wheat!

Celiac disease is triggered by consumption of the protein called gluten, which is found in wheat, barley, rye and other grains like spelt, triticale and kamut.

When people with celiac disease eat foods containing gluten, their immune system responds by damaging the fingerlike villi of the small intestine. When the villi become damaged, the body is unable to absorb nutrients into the bloodstream, which can lead to malnourishment.
Celiac disease is also known as celiac sprue, nontropical sprue, and gluten-sensitive enteropathy.
Researchers have determined that celiac disease is a genetic condition, meaning that it is inherited. In some cases, celiac becomes active or is triggered by events such as surgery, pregnancy, childbirth, viral infection, or severe emotional stress.

Roughly one out of every 133 Americans has celiac disease, but 97% remain undiagnosed. This means that almost three million Americans have celiac disease and only about 100,000 know they have it.

Left untreated, people with celiac disease can develop further complications such as other autoimmune diseases, osteoporosis, thyroid disease, and cancer.
There are a number of medical problems that are associated with undiagnosed celiac disease including cancer, osteoporosis, diabetes Type 1, thyroid problems and reproductive health issues.

What are the symptoms?
The symptoms of celiac disease vary amongst different people. Some patients develop symptoms as early in life, while others feel healthy far into adulthood.
Symptoms of celiac disease may or may not occur in the digestive system. For example, one person might have diarrhea and abdominal pain, while another person has irritability or depression. In fact, irritability is one of the most common symptoms in children.

Some of the most common symptoms of celiac disease include:
Bloating or Gas
Diarrhea
Constipation
Fatigue
Itchy Skin Rash
Tingling/Numbness
Pale Mouth Sores
Joint Pain
Delayed Growth
Poor Weight Gain
Thin Bones
Infertility
Headaches
Depression
Irritability
Discolored Teeth

Anemia, delayed growth, and weight loss are signs of malnutrition. Malnutrition is a serious problem for anyone, but particularly for children because they need adequate nutrition to develop properly. Failure to thrive during childhood development is a common indicator of celiac disease.

Some people with celiac disease may not have symptoms or what is called asymptomatic. The undamaged part of their small intestine is able to absorb enough nutrients to prevent symptoms. However, people without symptoms are still at risk for the complications of celiac disease.

How is celiac disease diagnosed?
Accurately diagnosing celiac disease can be quite difficult largely because the symptoms often mimic those of other diseases including irritable bowel syndrome, Chron's's disease, ulcerative colitis, diverticulosis, intestinal infections, chronic fatigue syndrome, and depression.

To gain a proper diagnosis of celiac disease, a physician will order the following blood tests:
Total IgA
IgA antitissue transglutaminase (tTG)
IgA antiendomysial antibody immunofluorescence (EMA) (It is important to continue eating a normal, gluten-containing diet before being tested for celiac.)

If the blood tests and symptoms indicate celiac, a physician may suggest a biopsy of the lining of the small intestine to confirm the diagnosis.

What is the treatment?
The only treatment for celiac disease is a lifelong gluten-free diet. A gluten-free diet means avoiding all foods that contain wheat (including spelt, triticale, and kamut), rye, and barley.
Despite these restrictions, people with celiac disease can eat a well-balanced diet with a variety of foods, including bread and pasta. For example, instead of wheat flour, people can use potato, rice, soy, or bean flour. Or, they can buy gluten-free bread, pasta, and other products from specialty food companies.

Safe gluten-free cooking substitutes:
Brown Rice Flour
Guar Gum
Potato Starch
Buckwheat
Quinoa
Aramanth
Almond Flour
Teff
Corn Flour
Tapioca Starch
Soy Flour
Xanthum Gum
Corn Starch
Potato Flour
Sweet Rice Flour
Lentil

The gluten-free diet is a lifetime requirement for people with celiac disease. Eating any gluten, no matter how small an amount, can damage the intestine. This is true for anyone with the disease, including people who do not have noticeable symptoms. DO NOT CHEAT!

Following a gluten-free diet may seem difficult at first, but, with a little creativity, anyone can make delicious gluten-free meals!

For example, plain meat, fish, rice, fruits, and vegetables do not contain gluten, so people with celiac disease can eat as much of these foods as they like. Places in the Chicagoland area that have the largest gluten free selections are Whole-Foods, Fruitful Yield, and Wild Oats. Other places, such as Meijer and Jewel have a small selection of gluten-free foods, but are getting bigger everyday. There are smaller stores in the Chicagoland area, but I haven't visisted them yet. There are also many online stores-just google gluten free foods.

Support groups are particularly helpful for newly diagnosed people and their families as they learn to adjust to a new way of life. I attend the Gluten Free Wikaduke group down in Plainfield, IL. See others in the Chicagoland area listed on the blog.

What Are The Complications of Celiac Disease?
Damage to the small intestine and the resulting problems with nutrient absorption put a person with celiac disease at risk for several diseases and health problems:

Lymphoma and adenocarcinoma are types of cancer that can develop in the intestine.
Osteoporosis is a condition in which the bones become weak, brittle, and prone to breaking. Poor calcium absorption is a contributing factor to osteoporosis.
Miscarriage and congenital malformation of the baby, such as neural tube defects, are risks for untreated pregnant women with celiac disease because of malabsorption of nutrients.
Short stature results when childhood celiac disease prevents nutrient absorption during the years when nutrition is critical to a child's normal growth and development. Children who are diagnosed and treated before their growth stops may have a catch-up period.
Seizures, or convulsions, result from inadequate absorption of folic acid. Lack of folic acid causes calcium deposits, called calcifications, to form in the brain, which in turn cause seizures.

My Story

2007-09-08T08:30:00.001-05:00

My name is Lori and I have celiac sprue or celiac disease. I received the official diagnosis on January 5, 2007. Thank you Dr. Ali!

My journey began in 2001 when I was having a difficult time becoming pregnant. I thought it was because it was related to my age (I’m an older gal), but now I know differently. Infertility and miscarriages are related to untreated celiac disease. I was told that I would miscarry at week 5. And by week 8 things did not look good. But by week 11, everything seemed to be okay….At 36 weeks, I delivered my first and only child, a healthy baby boy.

I almost died after his birth. I started to hemorrhage. My placenta would not detach from my uterus and I lost over 40% of my blood. In order to save my life, the doctors needed to give me a life saving hysterectomy and blood transfusion. I was later told I had placenta accreta-( the doctors didn’t know this before I delivered). In retrospect, I believe this incidence was related to having undiagnosed/untreated celiac disease.

It took almost 4 1/2 years to get my celiac diagnosis. I was told by doctors I was depressed and they all wanted to give me antidepressants to feel better. I knew it was much more than that, so after going to two endocrinologists, a chiropractor, and long conversations with my OB/GYN, nobody seemed to know what was wrong with me.

Thank goodness for a weekend of overindulgences of gluten packed food - pizza and beer! I ended up in the emergency room with deliberating pain on my lower left side. I was given a CAT scan and some pain medication and was told to go home and make an appointment with a gastrointestinal doctor. That is how I met Dr. Ali (Edward Hospital in Naperville). He is probably the most caring and compassionate doctor I have ever met. As soon as I sat down in his office and told him my symptoms, he said that he was going to test me for celiac sprue. I said, “Celiac Who? What the hell is that?” Thank God he listened to me and correctly tested me for this disease.

After my blood work confirmed the antibodies, I had a biopsy done (gold standard for celiac diagnosis.) The first biopsy was negative. My small intestine were fine. So, I just went on the assumption that I was gluten intolerant. Well, what do you know! Two years later I was diagnosed as having full-blown celiac disease! The villi in my small intestines were completely destroyed!

Since January 5, 2007, I have concentrated on learning as much as I can about this disease. I have visited many websites, read books like Dr. Green’s -Celiac Disease-The Hidden Epidemic (a must for your library!) and consulted with a misinformed dietician. I actually shared information with the dietician to add to her celiac file!

My background in education will help me help you become educated and informed about celiac disease and living a gluten-free life.